Hope Foundation broadens autoimmune advocacy

In response to growing calls from the community, the Hope Foundation has expanded its long-standing advocacy work that has been primarily focused on lupus to include arthritis.

For the first time, the two conditions shared the spotlight at the foundation’s 2025 Lupus and Arthritis Seminar, held on Sunday morning at the Radisson Aquatica Resort. The event signalled an important broadening of the organisation’s focus as it seeks to reach a wider group of patients in need of education, support, and visibility.

Rheumatologist Dr Cindy Flower

Member of the foundation’s medical advisory committee, rheumatologist Dr Cindy Flower, described the expansion as a direct response to public demand.

“The Hope Foundation has been known for being an advocacy group for lupus and for sickle cell disease, but we have had a demand for other autoimmune diseases, and arthritis patients really demanded that they get some representation as well.”

Dr Flower highlighted the strong overlap between lupus and arthritis, noting similarities in treatment and diet.

“A lot of the treatments used for lupus are used for a number of other autoimmune types of arthritis,” she said, adding that dietary advice for lupus patients is often relevant for those with arthritis too.

With more than 100 forms of arthritis recognised globally, Dr Flower said helping patients understand their conditions is key to early diagnosis and better outcomes.

“When you better understand the conditions, not only can you self-manage, but you can also present for medical attention in an opportune time to allow your disease to be controlled and minimise any suffering.”

Attendees were provided with informational material.

Sunday’s seminar featured several interactive presentations, which included an overview of lupus and arthritis by Senior Registrar in the Internal Medicine Department of the Queen Elizabeth Hospital, Dr Mellissa Boyce.

Third-year medical student at UWI Andwele Walrond explored kidney disease and its implications, while registered dietitian Kerri-Ann Best spoke on the role of diet in managing symptoms. Dr Shanika Russell addressed skin conditions, and obstetrician and gynaecologist Dr Tracy Archer discussed reproductive health in individuals affected by autoimmune disorders.

The Hope Foundation plans to host a follow-up session later this year with medical practitioners.  (STT)